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Research Applications

The FXCRC accepts applications from both FXCRC members and non-members requesting access to the de-identified information within the FXCRC family registry and/or database.

Research Application Guidelines
Click on a file name to read the application guidelines and instructions.

Protocol to Request Action by the FXCRC Request Review Committee

Guidelines for consortium or sponsored members to request access to registrants from the FXCRC registry or database

Guidelines for applications to obtain analyses of de-identified data from the FXCRC Registry or Clinical Database

Application Review Committee Membership

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Research Applications Previously Approved

Click on a file name to view the application, prior comments and recommendations from the reviewers.

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Progress Updates and Published Articles Resulting from FXCRC Approved Research

Click on the file name to view the update or article and to leave comments.

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